Understanding VSED: Insights from Recent Research

As an end-of-life worker, I often support individuals and families navigating difficult choices in the final stage of life. One option that has gained attention is VSED (Voluntarily Stopping Eating and Drinking), a legal and intentional decision to hasten death when faced with terminal illness or unbearable suffering. While VSED is deeply personal, it’s also complex—both medically and ethically.

A recent study published in the Journal of Pain and Symptom Management (Suri et al., 2023) sheds light on the realities of VSED, offering valuable perspectives for those considering this path. The research explores the motivations behind VSED, the role of caregivers, and the physical, emotional, and ethical dimensions of the process.

Key Findings from the Study
One of the most important takeaways from this research is that individuals who choose VSED are often driven by a strong desire for autonomy. They want control over their dying process, often to avoid prolonged suffering, loss of dignity, or the advanced stages of degenerative illnesses like Alzheimer’s. The study confirms what I’ve witnessed in my own work—patients and families approach this decision thoughtfully, weighing their values and quality of life above all else.

Another crucial aspect highlighted is the role of caregivers. VSED is not something that happens in isolation; it requires emotional and logistical support from family, hospice teams, or end-of-life workers like myself. The study emphasizes that caregivers experience significant emotional strain, particularly as they witness changes in their loved one’s physical condition. This underscores the importance of guidance, preparation, and clear communication throughout the process.

Ethical and Medical Considerations
One of the ongoing discussions around VSED is how to balance medical ethics with patient autonomy. The article highlights concerns among healthcare providers about withholding food and water, even when it is a patient’s voluntary choice. It also notes that while VSED is legal, not all medical professionals are comfortable supporting it. This makes advanced planning critical—ensuring that a compassionate, informed care team is in place.

Another key finding is that VSED is not always as straightforward as people assume. While many individuals become unconscious within a week, the process can take longer depending on a person’s condition and hydration levels before stopping intake. Symptom management—such as addressing dry mouth, restlessness, or discomfort—is essential, and having an experienced support network makes a significant difference in maintaining comfort.

Final Reflections
Reading this study affirmed much of what I’ve seen firsthand: VSED is a deeply personal choice, but it requires preparation, support, and compassionate care. Whether you are considering this option for yourself or supporting a loved one, having the right information and guidance is essential.

If you’d like to talk about VSED and how I can support you or your family in this journey, I offer a free 15-minute consultation to discuss your needs. Let’s navigate this path with care, dignity, and the support you deserve.

(Reference: Suri, S., et al. (2023). "Voluntarily Stopping Eating and Drinking (VSED): A Qualitative Study of Family Caregiver and Clinician Perspectives." Journal of Pain and Symptom Management.)